"Life I Imagined" — A Poem
This is not the life I dreamed. Not the path I would have chosen. Not the body I would have built, if I had been given a say. A poem about grief, becoming, and what it means to be built for exactly this...
Evidence-based insights on hEDS, MCAS, POTS, nervous system regulation, and building resilience. Written by someone living it, not theorizing about it.
This is not the life I dreamed. Not the path I would have chosen. Not the body I would have built, if I had been given a say. A poem about grief, becoming, and what it means to be built for exactly this...
Visibility is progress. It's also pressure. And we're losing the providers we can't afford to lose. The awareness explosion has been real — but there's another side nobody's talking about yet. Adapted from EDS Boom Podcast, Episode 1...
From "you should be able to do normal things" to "your EDS isn't real because you don't look sick," these myths keep zebras from getting proper support, pacing correctly, and trusting their own bodies. Let's bust them one by one and get you unstuck...
Compression is not one-size-fits-all, and wearing the wrong kind can actually make things worse. This guide covers garment types, pressure levels, when to wear them, how to avoid skin issues, and product recommendations that actually work for hypermobile bodies...
It's not in your head — or rather, it IS in your head, and that's completely connected to what's happening in your gut and mast cells. Understanding the polyvagal system, the gut-immune axis, and how emotions literally trigger histamine release can be transformative for your management strategy...
Most bras create internal pressure issues or fail to provide actual support. Forme approached this differently. Here's what makes their approach work for hEDS bodies, what I love, what surprised me, and honest talk about fit, durability, and whether it's worth the investment...