"Life I Imagined" — A Poem

📅 April 2026 Poetry

This is not the life I dreamed. Not the path I would have chosen. Not the body I would have built, if I had been given a say. A poem about grief, becoming, and what it means to be built for exactly this...

The EDS Boom Is Real. So Is the Crisis Nobody's Talking About.

📅 May 2026 Advocacy

Visibility is progress. It's also pressure. And we're losing the providers we can't afford to lose. The awareness explosion has been real — but there's another side nobody's talking about yet. Adapted from EDS Boom Podcast, Episode 1...

7 Myths About EDS That Are Keeping You Stuck

📅 April 2026 Education

From "you should be able to do normal things" to "your EDS isn't real because you don't look sick," these myths keep zebras from getting proper support, pacing correctly, and trusting their own bodies. Let's bust them one by one and get you unstuck...

The Zebra's Guide to Compression: What Works, What Doesn't, & Why Your Size Matters

📅 April 2026 Practical Tools

Compression is not one-size-fits-all, and wearing the wrong kind can actually make things worse. This guide covers garment types, pressure levels, when to wear them, how to avoid skin issues, and product recommendations that actually work for hypermobile bodies...

What the Research on Gut-Brain-MCAS Actually Means for Your Flares — My Breakdown

📅 April 2026 Nervous System

It's not in your head — or rather, it IS in your head, and that's completely connected to what's happening in your gut and mast cells. Understanding the polyvagal system, the gut-immune axis, and how emotions literally trigger histamine release can be transformative for your management strategy...

Forme Intimates Review: Finally, a Bra Designed for Bendy Bodies

📅 April 2026 Product Review

Most bras create internal pressure issues or fail to provide actual support. Forme approached this differently. Here's what makes their approach work for hEDS bodies, what I love, what surprised me, and honest talk about fit, durability, and whether it's worth the investment...